Page Last Updated: April 8, 2026

Version: BR 4.0 (v1.3)🔗

New features🔗

  • Added 3 new Data Dictionary elements (column headers)
  • Unit (‘unit’)
  • Display order (‘order_display’)
  • Note (‘note’)
  • Removed leaked HTML code from Data Dictionary and data

Additional Filters🔗

Excluded 5 EUY participants

Data Conversions🔗

  • Converted 'Candidate age at Administration' from 'months' to 'years' (3 decimal point precision) for all visits other than V01
  • Converted 'DoB' and 'Candidate age at Administration' @ V01 to 'n/a'

Previous Issues Addressed🔗

  • Addressed participants listed on phenotype data but not listed in participants.tsv file (n=30)

Additional Notes🔗

  • 'Site' currently not included in phenotypical data, only on the scans.tsv
  • 'Site' to be added in future iterations as a column in each instrument's .csv file
  • Based on the 3 letter code, needs conversion to ‘HBCDsiteXX’ coding scheme

Total number of unique participants and visits included in first data dump:

  • 1,398 unique participants
  • 1,918 visits
    • V01 visits: 1,126
    • V02 visits: 666
    • V03 visits: 126