Page Last Updated: April 8, 2026

Version: BR 5.0🔗

New features🔗

Added new Data Dictionary elements (column headers):
  • Header (‘header’)
  • Instruction ('instruction')
  • Sort Order ('order_sort')
  • Label in Spanish ('label_es')
  • Instruction in Spanish ('instructions_es')
  • Header in Spanish ('header_es')
  • Note in Spanish ('note_es')
Relabeled Data Dictionary element:
  • ‘Full Instrument Name’ relabeled as ‘table_label’


‘Basic Demographics’ category:
  • Sex ('sex')
  • Substance Use (‘substance_use’) (currently a placeholder)
  • Child Race
  • Child Ethnicity
  • Maternal Race - Single Point
  • Maternal Race - Multi
  • Maternal Ethnicity
  • Maternal Education
  • Languages spoken at home
  • Gestational age at birth (currently ‘n/a’ for all cases)
  • Recruitment Site

‘Visit Data’ category:
  • Visit Label (‘visit’)
  • Project (‘project’)
  • Cohort (‘cohort’)
  • Site (‘site’)
  • Visit Stage (‘visit_stage’)
  • Visit Date (‘visit_date’)
  • Visit Missed (visit_missed’)
  • Visit Missed - Reason (‘reason_visit_missed’)
  • Participant Withdrawal (‘participant_withdrawal’)
  • Participant Withdrawal - Reason (‘participant_withdrawal_reason’)
  • Participant Withdrawal - Date (‘participant_withdrawal_date’)
  • ProtocolException (‘protocol_exception’)
  • Protocol Exception - Date (‘protocol_exception_date’)

Additional Filters🔗

  • Excluded GABI Setup/Receipt and all ERICA forms (Added to exclusion filter)

Data Conversions🔗

Converted extreme/out of range values for Baby Birth Length data (instrument ‘pex_bm_healthv2_inf’) to ‘n/a’ (anything above or below thresholds gets converted to 'n/a' - inclusive) as follows :
  • pexbmhealthv2inf001i01 (Weight in Ounces): higher than 16
  • pexbmhealthv2inf001i02 (Weight in Pounds): higher than 66
  • pexbmhealthv2inf002 (Height/length in Inches): outside of range 12-51
  • pexbmhealthv2inf002i01 (Height/length in cms): outside of range 30-130

Previous Issues Addressed🔗

  • Import of ‘Maternal Demographic’ data from Ripple into LORIS

Additional Notes🔗

  • 'Site' included in phenotypical data under the new ‘Visit Data’ category (based on the 3 letter code; needs conversion to ‘HBCDsiteXX’ coding scheme)

Total number of unique participants and visits included in first data dump

  • 1,367 unique participants
  • 1,919 visits
    • V01 visits: 1,127 (185 participants for which only V01 visit exists)
    • V02 visits: 666
    • V03 visits: 126